IS NOT A SPORT FOR SPECTATORS
about children's quality of life one can only occasionally face a great
problem; but when we consider the quality of life of a sick child affected
with chronic diseases the duty becomes one of those no one, no parent is
able to face alone. When a cardiac problem hangs over you, and life breath
seems to get out of you, you are seized by a lot of questions: how will
be my son's life?
In which conditions will he face the school?
It is necessary to start a dialogue with the institutions, the physicians
and the schools in other to advertise all the life conditions and all that
surround the sick child. Life is not a sport for spectators, as parents
we must be prompts, creatives and full of imagination. Despite the difficulty
we must warrant our sons confidence and love to allow them to face the world
with a luggage full of resources that will not dissolve in the air. We must
never forget, either as physicians, as educators or parents, that children
have the wish and are entitled to have growth possibility and qualitatives
levels of live equals to the others.
An important factor is to find the way by which the children can follow
school an others forms of education all together. Only realizing normal
situations of aggregation, the child can have the confirmation that even
"my" life is useful and is not only a great problem, even "my"
life is of value for the others, for my parents and last but not least for
the report of the Parents Association of Denmark)